I'm so excited to share the Beyond My Battle Podcast #8, where I shared a little bit of my journey with Josie. Here's more info and a link to listen:
Copied from the Beyond My Battle Website:
Episode 8 Responding to a Loved Ones’ Diagnosis
Receiving a diagnosis is equally as difficult for those who love us. In this episode, we speak with two caregivers to provide their perspectives on what it felt like. Steve is the parent of a child with Sanfilippo syndrome and Sarah is the parent of a child with Down syndrome and Autism. They share what it was like to get a diagnosis for their child, how they initially responded, and how they went on to find community and care for themselves so they could be the best caregiver possible. We also speak with Dr. Lisa Dungate, who is a licensed mental health counselor. Lisa talks with us about how any caregiver can address feelings of helplessness, how to support a loved one effectively, and the importance of practicing self-care to avoid burnout.
In this episode you’ll relate to, or gain insight about…
Feeling devastated or in denial at the time of diagnosis
The fear and anxiety of knowing your loved ones’ health is compromised
How to manage the responsibilities of being a caregiver while practicing self-care to avoid burnout
Why being a part of some kind of community is important for caregivers
Reframing a diagnosis into an offering of presence and compassion
Feeling like you are losing control, helpless, or powerless
Why we are not as effective as a caregiver when we don’t take care of ourselves
The grieving phases and how it directly applies to care partners
Having compassion for yourself
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